Dataset Information

Using community-based participatory research to develop a bilingual mental health survey for Latinos.

ABSTRACT:

Background

Despite rapid growth, Latino communities' mental health needs are unmet by existing services and research. Barriers may vary by geographic locations, but often include language, insurance coverage, immigration status, cultural beliefs, and lack of services.

Objectives

The aim of this research was development of a cross-sectional instrument to assess the mental health status, beliefs, and knowledge of resources among rural and urban Latinos residing in a Midwestern state.

Methods

The purpose of this article is to describe the community-based participatory research (CBPR) process of instrument development and lessons learned.

Results

A culturally relevant, 100-item bilingual survey instrument was developed by community and academic partners.

Lessons learned

Community-based participatory research methods are salient for sensitive health topics and varied research objectives, including instrument development. To ensure cultural and social relevance of research, community participation is crucial at all stages of research, including developing the research question and instrument.

SUBMITTER: Garcia CM

PROVIDER: S-EPMC3276245 | biostudies-literature | 2008

REPOSITORIES: biostudies-literature

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Publications

Using community-based participatory research to develop a bilingual mental health survey for Latinos.

Garcia Carolyn M CM Gilchrist Lauren L Campesino Centro C Raymond Nancy N Naughton Sandy S de Patino Janeth Guerra JG

Progress in community health partnerships : research, education, and action 20080101 2

<h4>Background</h4>Despite rapid growth, Latino communities' mental health needs are unmet by existing services and research. Barriers may vary by geographic locations, but often include language, insurance coverage, immigration status, cultural beliefs, and lack of services.<h4>Objectives</h4>The aim of this research was development of a cross-sectional instrument to assess the mental health status, beliefs, and knowledge of resources among rural and urban Latinos residing in a Midwestern state ...[more]

PMID: 20208244

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Project description:BackgroundHeart Healthy Lenoir is a transdisciplinary project aimed at creating long-term, sustainable approaches to reduce cardiovascular disease risk disparities in Lenoir County, North Carolina using a design spanning genomic analysis and clinical intervention. We hypothesized that residents of Lenoir County would be unfamiliar and mistrustful of genomic research, and therefore reluctant to participate; additionally, these feelings would be higher in African-Americans.MethodologyTo test our hypothesis, we conducted qualitative research using community-based participatory research principles to ensure our genomic research strategies addressed the needs, priorities, and concerns of the community. African-American (n = 19) and White (n = 16) adults in Lenoir County participated in four focus groups exploring perceptions about genomics and cardiovascular disease. Demographic surveys were administered and a semi-structured interview guide was used to facilitate discussions. The discussions were digitally recorded, transcribed verbatim, and analyzed in ATLAS.ti.Results and significanceFrom our analysis, key themes emerged: transparent communication, privacy, participation incentives and barriers, knowledge, and the impact of knowing. African-Americans were more concerned about privacy and community impact compared to Whites, however, African-Americans were still eager to participate in our genomic research project. The results from our formative study were used to improve the informed consent and recruitment processes by: 1) reducing misconceptions of genomic studies; and 2) helping to foster participant understanding and trust with the researchers. Our study demonstrates how community-based participatory research principles can be used to gain deeper insight into the community and increase participation in genomic research studies. Due in part to these efforts 80.3% of eligible African-American participants and 86.9% of eligible White participants enrolled in the Heart Healthy Lenoir Genomics study making our overall enrollment 57.8% African-American. Future research will investigate return of genomic results in the Lenoir community.

Project description:BackgroundCommunity health participation is an essential tool in health research and management where community members, researchers and other relevant stakeholders contribute to the decision-making processes. Though community participation processes can be complex and challenging, evidence from previous studies have reported significant value of engaging with community in community health projects.ObjectiveTo identify the nature and extent of community involvement in community health participatory research (CHPR) projects in Ghana and draw lessons for participatory design of a new project on diabetes intervention in Accra called the Contextual Awareness Response and Evaluation (CARE) diabetes project.MethodsA scoping review of relevant publications on CHPR projects in Ghana which had a participatory component was undertaken. PubMed, PsycINFO, African Journal Online, Health Source: Nursing/Academic Edition, Humanities International Complete and Google Scholar were searched for articles published between January 1950 and October 2021. Levac et al.'s (2010) methodological framework for scoping reviews was used to select, collate and characterise the data.ResultsFifteen studies were included in this review of CHPR projects from multiple disciplines. Participants included community health workers, patients, caregivers, policymakers, community groups, service users and providers. Based on Pretty's participation typology, several themes were identified in relation to the involvement of participants in the identified studies. The highest levels of participation were found in two studies in the diagnosis, four in the development, five in the implementation and three in the evaluation phases of projects. Community participation across all studies was assessed as low overall.ConclusionThis review showed that community participation is essential in the acceptability and feasibility of research projects in Ghana and highlighted community participation's role in the diagnosis, development, implementation and evaluation stages of projects. Lessons from this review will be considered in the development, implementation, and future evaluation of the CARE diabetes project.

Dataset Information

Using community-based participatory research to develop a bilingual mental health survey for Latinos.

Background

Objectives

Methods

Results

Lessons learned

Publications

Using community-based participatory research to develop a bilingual mental health survey for Latinos.

Similar Datasets

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