What are the research priorities for idiopathic intracranial hypertension? A priority setting partnership between patients and healthcare professionals.

ABSTRACT:

Objective

Idiopathic intracranial hypertension (IIH) is under-researched and the aim was to determine the top 10 research priorities for this disease.

Design

A modified nominal group technique was used to engage participants who had experience of IIH.

Setting

This James Lind Alliance Priority Setting Partnership was commissioned by IIH UK, a charity.

Participants

People with IIH, carers, family and friends, and healthcare professionals participated in two rounds of surveys to identify unique research questions unanswered by current evidence. The most popular 26 uncertainties were presented to stakeholders who then agreed the top 10 topics.

Results

The top 10 research priorities for IIH included aetiology of IIH, the pathological mechanisms of headache in

SUBMITTER: Mollan S 

PROVIDER: S-EPMC6429891 | biostudies-literature | 2019 Mar

REPOSITORIES: biostudies-literature