Dataset Information

Framework for creating storytelling materials to promote African American/Black adult enrollment in research on Alzheimer's disease and related disorders.

ABSTRACT:

Introduction

African American/Black adults are severely underrepresented in basic, clinical, and behavioral research studies in Alzheimer's disease and related disorders (ADRD). Innovative, evidence-based, and culturally salient strategies can maximize the recruitment of African American/Black adults into ADRD research.

Methods

We conducted and analyzed semi-structured interviews to capture the research participation stories of African American/Black participants and study partners from the University of Pittsburgh's Alzheimer's Disease Research Center. The themes and messaging principles generated through this process informed the development of video- and text-based materials that were evaluated for community member acceptance using focus groups.

Results

Focus group individuals (N = 36) generally favorably rated the video and text materials, characterizing them as "interesting," "realistic," and "convincing."

Discussion

Capturing the narratives of African American/Black research participants is a critical component to developing culturally relevant materials for broader dissemination and is essential to advancing beyond information-only recruitment approaches, which tend to rely disproportionately on negative messages.

SUBMITTER: Robinson RAS

PROVIDER: S-EPMC7507510 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature

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Publications

Framework for creating storytelling materials to promote African American/Black adult enrollment in research on Alzheimer's disease and related disorders.

Robinson Renã A S RAS Williams Ishan C IC Cameron Judy L JL Ward Keisha K Knox Melissa M Terry Melita M Tamres Lisa L Mbawuike Uchenna U Garrett Marita M Lingler Jennifer H JH

Alzheimer's & dementia (New York, N. Y.) 20200911 1

<h4>Introduction</h4>African American/Black adults are severely underrepresented in basic, clinical, and behavioral research studies in Alzheimer's disease and related disorders (ADRD). Innovative, evidence-based, and culturally salient strategies can maximize the recruitment of African American/Black adults into ADRD research.<h4>Methods</h4>We conducted and analyzed semi-structured interviews to capture the research participation stories of African American/Black participants and study partner ...[more]

PMID: 32995472

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Dataset Information

Framework for creating storytelling materials to promote African American/Black adult enrollment in research on Alzheimer's disease and related disorders.

Introduction

Methods

Results

Discussion

Publications

Framework for creating storytelling materials to promote African American/Black adult enrollment in research on Alzheimer's disease and related disorders.

Similar Datasets

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