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ABSTRACT: Background
Health information technology (IT) interventions to decrease readmissions for cirrhosis may be limited by patient-associated factors.Objective
The aim of this study was to determine perspectives regarding adoption versus refusal of health IT interventions among patient-caregiver dyads.Methods
Inpatients with cirrhosis and their caregivers were approached to participate in a randomized health IT intervention trial requiring daily contact with research teams via the Patient Buddy app. This app focuses on ascites, medications, and hepatic encephalopathy over 30 days. Regression analyses for characteristics associated with acceptance were performed. For those who declined, a semistructured interview was performed with themes focused on caregivers, protocol, transport/logistics, technology demands, and privacy.Results
A total of 349 patient-caregiver dyads were approached (191 from Virginia Commonwealth University, 56 from Richmond Veterans Affairs Medical Center, and 102 from Mayo Clinic), 87 of which (25%) agreed to participate. On regression, dyads agreeing included a male patient (odds ratio [OR] 2.08, P=.01), gastrointestinal bleeding (OR 2.3, P=.006), or hepatic encephalopathy admission (OR 2.0, P=.01), whereas opioid use (OR 0.46, P=.03) and alcohol-related etiology (OR 0.54, P=.02) were associated with refusal. Race, study site, and other admission reasons did not contribute to refusing participation. Among the 262 dyads who declined randomization, caregiver reluctance (43%), perceived burden (31%), technology-related issues (14%), transportation/logistics (10%), and others (4%), but not privacy, were highlighted as major concerns.Conclusions
Patients with cirrhosis admitted with hepatic encephalopathy and gastrointestinal bleeding without opioid use or alcohol-related etiologies were more likely to participate in a health IT intervention focused on preventing readmissions. Caregiver and study burden but not privacy were major reasons to decline participation. Reducing perceived patient-caregiver burden and improving communication may improve participation.Trial registration
ClinicalTrials.gov NCT03564626; https://www.clinicaltrials.gov/ct2/show/NCT03564626.
SUBMITTER: Acharya C
PROVIDER: S-EPMC8065567 | biostudies-literature | 2021 Apr
REPOSITORIES: biostudies-literature
Acharya Chathur C Sehrawat Tejasav S TS McGuire Deborah B DB Shaw Jawaid J Fagan Andrew A McGeorge Sara S Olofson Amy A White Melanie B MB Gavis Edith E Kamath Patrick S PS Bergstrom Lori L Bajaj Jasmohan Singh JS
Journal of medical Internet research 20210409 4
<h4>Background</h4>Health information technology (IT) interventions to decrease readmissions for cirrhosis may be limited by patient-associated factors.<h4>Objective</h4>The aim of this study was to determine perspectives regarding adoption versus refusal of health IT interventions among patient-caregiver dyads.<h4>Methods</h4>Inpatients with cirrhosis and their caregivers were approached to participate in a randomized health IT intervention trial requiring daily contact with research teams via ...[more]