Evaluating co-created patient-facing materials to increase understanding of genetic test results.

ABSTRACT: Patients often have difficulty understanding genetic test reports. Technical language and jargon can impede comprehension and limit patients using results to act on findings. One potential way to improve patient understanding of genetic test reports is to provide patient-facing materials. This study aimed to examine understandability and actionability of co-created patient-facing materials for genetic test results in a research context. We combined interprofessional perspectives and patient engagement to co-create patient-facing materials for patients undergoing research genetic testing for congenital hypogonadotropic hypogonadism (Kallmann syndrome). The iterative development process was guided by principles of health literacy and human-centered design (i.e., design thinking). Readability

SUBMITTER: Dwyer AA 

PROVIDER: S-EPMC8284837 | biostudies-literature | 2021 Apr

REPOSITORIES: biostudies-literature