Development and Validation of a Kidney-Transplant Specific Measure of Treatment Burden.

ABSTRACT:

Background

Treatment burden refers to the work involved in managing one's health and its impact on well-being and has been associated with nonadherence in patients with chronic illnesses. No kidney transplant (KT)-specific measure of treatment burden exists. The aim of this study was to develop a KT-specific supplement to the Patient Experience with Treatment and Self-Management (PETS), a general measure of treatment burden.

Methods

After drafting and pretesting KT-specific survey items, we conducted a cross-sectional survey study involving KT recipients from Mayo Clinic in Minnesota, Arizona, and Florida. Exploratory factor analysis (EFA) was used to identify domains for scaling the KT-specific supplement. Construct and known-groups validity were determined.

Results

SUBMITTER: Lorenz EC 

PROVIDER: S-EPMC9440455 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature