Dataset Information

Families Addressing Cancer Together (FACT): feasibility and acceptability of a web-based psychosocial intervention for parents with cancer.

ABSTRACT:

Purpose

Although parents with cancer report that talking with their children about cancer and dying is distressing, accessible support is rare. We assessed the feasibility, acceptability, and preliminary effects of Families Addressing Cancer Together (FACT), a web-based, tailored psychosocial intervention to help parents talk about their cancer with their children.

Methods

This pilot study used a pre-posttest design. Eligible participants were parents with new or metastatic solid tumors who had minor (ages 3-18) children. Participants who completed baseline assessments received online access to FACT. We assessed feasibility through enrollment and retention rates and reasons for study refusal. Acceptability was evaluated by satisfaction ratings. We examined participants' selection of intervention content and preliminary effects on communication self-efficacy and other psychosocial outcomes (depression and anxiety symptoms, health-related quality of life, family functioning) at 2- and 12-week post-intervention.

Results

Of 68 parents we approached, 53 (78%) agreed to participate. Forty-six parents completed baseline assessments and received the FACT intervention. Of the 46 participants, 35 (76%) completed 2-week assessments, and 25 (54%) completed 12-week assessments. Parents reported that FACT was helpful (90%), relevant (95%), and easy to understand (100%). Parents' psychosocial outcomes did not significantly improve post-intervention, but parents endorsed less worry about talking with their child (46% vs. 37%) and reductions in the number of communication concerns (3.4 to 1.8).

Conclusion

The FACT intervention was feasible, acceptable, and has potential to address communication concerns of parents with cancer. A randomized trial is needed to test its efficacy in improving psychological and parenting outcomes.

Trial registration

This study was IRB-approved and registered with clinicaltrials.gov (NCT04342871).

SUBMITTER: Park EM

PROVIDER: S-EPMC9530016 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature

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Publications

Families Addressing Cancer Together (FACT): feasibility and acceptability of a web-based psychosocial intervention for parents with cancer.

Park Eliza M EM Deal Allison M AM Heiling Hillary M HM Jung Ahrang A Yopp Justin M JM Bowers Savannah M SM Hanson Laura C LC Song Mi-Kyung MK Valle Carmina G CG Yi Brian B Cassidy Anna A Won Hannah H Rosenstein Donald L DL

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 20220713 10

<h4>Purpose</h4>Although parents with cancer report that talking with their children about cancer and dying is distressing, accessible support is rare. We assessed the feasibility, acceptability, and preliminary effects of Families Addressing Cancer Together (FACT), a web-based, tailored psychosocial intervention to help parents talk about their cancer with their children.<h4>Methods</h4>This pilot study used a pre-posttest design. Eligible participants were parents with new or metastatic solid ...[more]

PMID: 35831719

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Dataset Information

Families Addressing Cancer Together (FACT): feasibility and acceptability of a web-based psychosocial intervention for parents with cancer.

Purpose

Methods

Results

Conclusion

Trial registration

Publications

Families Addressing Cancer Together (FACT): feasibility and acceptability of a web-based psychosocial intervention for parents with cancer.

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