Well-being in chronic pediatric inflammatory rheumatic diseases: the experience of a French healthcare network.

ABSTRACT:

Objective

Current management of patients with pediatric rheumatic diseases (PRD) should aim at achieving the best possible well-being. To identify sociodemographic/clinical characteristics, needed paramedical services and school accommodations associated with well-being in patients at inclusion in a French health network Réseau pour les Rhumatismes Inflammatoires Pédiatriques (RESRIP) that supports coordination of the patient's health pathway. To evaluate the evolution of well-being over time in this patients benefiting from such support.

Methods

Patients > 3 years old enrolled in RESRIP (2013-2020) were included. At enrollment, data were collected on sociodemographic/clinical characteristics, ongoing medications, and paramedical and educational actions to be implemented by

SUBMITTER: El Haddad R 

PROVIDER: S-EPMC9990204 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature