Ontology highlight
ABSTRACT: Objectives
To provide recommendations for future common data element (CDE) development and collection that increases community partnership, harmonizes data interpretation, and continues to reduce barriers of mistrust between researchers and underserved communities.Methods
We conducted a cross-sectional qualitative and quantitative evaluation of mandatory CDE collection among Rapid Acceleration of Diagnostics-Underserved Populations Return to School project teams with various priority populations and geographic locations in the United States to: (1) compare racial and ethnic representativeness of participants completing CDE questions relative to participants enrolled in project-level testing initiatives and (2) identify the amount of missing CDE data by CDE domain. Additiona
SUBMITTER: Uthappa DM
PROVIDER: S-EPMC10312277 | biostudies-literature | 2023 Jul
REPOSITORIES: biostudies-literature