Family Perception of OpenNotes in the Neonatal Intensive Care Unit.

ABSTRACT:

Background

 OpenNotes, or sharing of medical notes via a patient portal, has been studied extensively in the adult population, but less in pediatric populations, and even more rarely in inpatient pediatric or intensive care settings.

Objectives

 This study aimed to understand families' interaction with and perception of inpatient hospital notes shared via patient portal in a community Neonatal Intensive Care Unit (NICU).

Methods

 At the end of the NICU discharge education, completed in the patient portal before discharge, families were offered an anonymous survey on OpenNotes.

Results

 Out of 446 NICU patients from March 16, 2022 to March 16, 2023, there were 59 respondents (13%). Race was primarily Asian (48%), and English was the predominant language (93%). M

SUBMITTER: McCallie KR 

PROVIDER: S-EPMC10901642 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature