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Dataset Information

Vulval lichen sclerosus in UK general practice: a cross-sectional survey of patient experience.


ABSTRACT:

Objective

To explore experience and prevalence of vulval lichen sclerosus (VLS) diagnosis in general practice using an anonymous patient survey.

Design

Quantitative descriptive cross-sectional survey informed by previous qualitative interviews and developed with patient representatives, sent to people recorded in general practice as having a VLS diagnosis.

Setting

General practices (n=24) in the UK (West Midlands).

Participants

n=177 respondents.

Results

One in five respondents reported that they had been misdiagnosed, and about a third reported that it was a struggle to get treatment. Only one third said they received regular check-ups, recommended in clinical guidelines. One-fifth reported they were not being treated with topical corticosteroids, the m

SUBMITTER: Rees S 

PROVIDER: S-EPMC12414219 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature