Ontology highlight
ABSTRACT: Aim
To identify Endometriosis Nurse Specialists' roles and responsibilities in accredited Endocentres, how these align with the Royal College of Nursing Skills Framework and potential for development to improve patient care.Design
Cross-sectional national survey.Methods
Data were collected from an online survey distributed to all 66 Endometriosis Nurse Specialists working across 58 UK-based Endometriosis registered centres. The response rate was 58% (N = 38). Data from closed questions were analysed using descriptive statistics, and free text responses were collated and analysed thematically.Results
Unlike Nurse Specialists in other fields of practice, most Endometriosis Nurse Specialists (N = 33, 87%) had another nursing role. The median hours worked per week as an endometriosis nurse was only 13.5 hr. Most respondents (N = 35, 92%) spent all or most of their allocated hours collecting and inputting endometriosis data, whilst over a third (N = 13, 34%) were not undertaking any autonomous, nurse-led patient consultations.
SUBMITTER: Norton W
PROVIDER: S-EPMC7544879 | biostudies-literature | 2020 Nov
REPOSITORIES: biostudies-literature

Norton Wendy W Mitchell Helene H Holloway Debra D Law Caroline C
Nursing open 20200723 6
<h4>Aim</h4>To identify Endometriosis Nurse Specialists' roles and responsibilities in accredited Endocentres, how these align with the Royal College of Nursing Skills Framework and potential for development to improve patient care.<h4>Design</h4>Cross-sectional national survey.<h4>Methods</h4>Data were collected from an online survey distributed to all 66 Endometriosis Nurse Specialists working across 58 UK-based Endometriosis registered centres. The response rate was 58% (<i>N</i> = 38). Data ...[more]