A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings.

ABSTRACT:

Background

Cystic fibrosis (CF) is an inherited chronic condition that requires extensive daily care and quarterly clinic visits with a multidisciplinary care team. The limited exchange of information outside of the quarterly clinic visits impedes optimal disease self-management, patient engagement, and shared decision making.

Objective

The aim of this study is to adapt a mobile health (mHealth) app originally developed in Sweden to the needs of patients, families, and health care providers in a CF center in the United States and to test it as a platform for sharing patient-generated health data with the CF health care team.

Methods

Focus groups with health care providers of patients with CF, adolescents with CF, and caregivers of children with CF were conducted to de

SUBMITTER: Rutland SB 

PROVIDER: S-EPMC7872830 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature