Current Knowledge on the Evolution of Care Partner Burden, Needs, and Coping in Parkinson's Disease.

ABSTRACT:

Background

Care partners support people with Parkinson's disease through a long journey ranging from independence to dependence for many daily tasks. Longitudinal studies are important to understand the evolution of this process and predictors of future needs of care partners.

Methods

A scoping review was conducted, searching PubMed for longitudinal studies examining care partner burden, needs or coping in Parkinson's disease published through May 2020.

Results

Eight observational studies and 19 interventional studies met the eligibility criteria. Longitudinal observation ranged from 7 weeks to 10 years, involving between six and 8515 care partners. All studies addressed care partner burden, while two and three studies respectively addressed needs and coping. Only one

SUBMITTER: Hulshoff MJ 

PROVIDER: S-EPMC8088088 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature