Parental stress and adjustment in the context of rare genetic syndromes: A scoping review.
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SUBMITTER: Fitzgerald J
PROVIDER: S-EPMC9168905 | biostudies-literature | 2021 Apr
REPOSITORIES: biostudies-literature
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Parental stress and adjustment in the context of rare genetic syndromes: A scoping review.
Fitzgerald Jacqueline J Gallagher Louise L
Journal of intellectual disabilities : JOID 20210419
Chromosomal abnormalities are now considered a common cause of intellectual disability. With increased genetic testing, phenotyping and technological advancements, many new syndromes have been identified. This review sought to explore parental stress and adjustment in the context of rare genetic syndromes to evaluate their clinical impact. A systematic review of English peer-reviewed literature across three databases (PsycINFO, Medline, CINAHL) was completed and 69 articles were included. Parent ...[more]
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