Dataset Information

Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study.

ABSTRACT:

Objectives

To examine treatment decision-making priorities and experiences among parents of children with cancer in Guatemala.

Setting

This study was conducted at Guatemala's National Pediatric Cancer Center in Guatemala City.

Participants

Spanish-speaking parents of paediatric patients (≤18 years of age) diagnosed with any form of cancer within the 8 weeks prior to study enrolment. The quantitative portion of this study included 100 parent participants; the qualitative component included 20 parents. Most participants were Catholic or Evangelical Spanish-speaking mothers.

Outcomes

Priorities and experiences of cancer treatment decision-making including decision-making role and experienced regret.

Results

A range of paediatric ages and cancer diagnoses were included. Most Guatemalan parents surveyed (70%) made decisions about their child's cancer together and almost all (94%) without input from their community. Surveyed parents predominately preferred shared decision-making with their child's oncologist (76%), however 69% agreed it was best not to be provided with many options. Two-thirds of surveyed parents (65%) held their preferred role in decision-making, with fathers more likely to hold their preferred role than mothers (p=0.02). A small number of parents (11%) experienced heightened decisional regret, which did not correlate with socio-demographic characteristics or preferred decision-making role. Qualitative results supported quantitative findings, demonstrating a decision-making process that emphasised trust and honesty.

Conclusions

Guatemalan parents preferred to make decisions with their medical team and appreciated providers who were honest and inclusive, but directive about decisions. This study reinforces the importance of the provider-parent relationship and encourages clinicians in all settings to ask about and honour each parent's desired role in decision-making.

SUBMITTER: Graetz DE

PROVIDER: S-EPMC9379539 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature

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Publications

Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study.

Graetz Dylan E DE Rivas Silvia S Wang Huiqi H Vedaraju Yuvanesh Y Ferrara Gia G Fuentes Lucia L Cáceres-Serrano Ana A Antillon-Klussmann Federico F Devidas Meenakshi M Metzger Monika M Rodriguez-Galindo Carlos C Mack Jennifer W JW

BMJ open 20220811 8

<h4>Objectives</h4>To examine treatment decision-making priorities and experiences among parents of children with cancer in Guatemala.<h4>Setting</h4>This study was conducted at Guatemala's National Pediatric Cancer Center in Guatemala City.<h4>Participants</h4>Spanish-speaking parents of paediatric patients (≤18 years of age) diagnosed with any form of cancer within the 8 weeks prior to study enrolment. The quantitative portion of this study included 100 parent participants; the qualitative com ...[more]

PMID: 35953257

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Dataset Information

Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study.

Objectives

Setting

Participants

Outcomes

Results

Conclusions

Publications

Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study.

Similar Datasets

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