Patient-Reported Health-Related Quality of Life in Individuals with Inherited Retinal Diseases.

ABSTRACT:

Purpose

To evaluate the impact of inherited retinal diseases (IRDs) on quality of life (QoL) using multiattributable health utilities derived from primary patient data.

Design

Cross-sectional observational study.

Participants

Seventy adult patients (mean age, 42.7 years) with IRD recruited from state-wide services in Australia.

Methods

Health utility values were calculated from the Assessment of Quality of Life 8-Dimension (AQoL-8D). Linear regressions were used to analyze the relationship between the 25-item and 39-item National Eye Institute Visual Function Questionnaires (NEI-VFQ-25 and NEI-VFQ-39, respectively) and health utilities from the AQoL-8D.

Main outcome measures

The AQoL-8D utility values were compared between the IRD cohort and population n

SUBMITTER: Schofield D 

PROVIDER: S-EPMC9560564 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature