To donate, or not to donate, that is the question: Latino insights into brain donation.

ABSTRACT:

Introduction

Latinos are underrepresented in brain autopsy research on Alzheimer's disease and related dementias (ADRD). The study's purpose is to identify Latinos' attitudes about brain donation (BD) to inform methods by which researchers can increase autopsy consent.

Methods

Forty Latinos (mean age: 59.4 years) completed a semi-structured interview and were presented with educational information about BD. Participants completed a questionnaire assessing their understanding of BD and willingness to donate their brain for research.

Results

Among participants, there was near unanimous support for BD to study ADRD after hearing educational information. However, prior to the information presented, participants reported a lack of knowledge about BD and demonstrated a poss

SUBMITTER: Morlett Paredes A 

PROVIDER: S-EPMC9968816 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature