Experiences of Living With the Nonmotor Symptoms of Parkinson's Disease: A Photovoice Study.

ABSTRACT:

Background

Nonmotor symptoms (NMSs) are frequently experienced by people with Parkinson's disease (PD) and are often perceived as their most bothersome symptoms. However, these remain poorly understood with suboptimal clinical management. These unmet needs are an important determinant of health-related quality of life (QoL) in PD.

Objective

The aim of this study was to gain insights into the experience of living with the NMS of PD in real-time using participatory action methodology.

Method

Using the photovoice method, 14 people with PD took photographs to document their experiences of living with the NMS of PD. They composed corresponding written narratives to capture the impact of NMS on their daily activities and QoL. In total, 152 photographs and corresponding narr

SUBMITTER: Smith LJ 

PROVIDER: S-EPMC11199325 | biostudies-literature | 2024 Jun

REPOSITORIES: biostudies-literature